Resources

An organization with the mission to further accelerate global research, drive risk reduction, and maximize quality care and support. They offer a 24/7 helpline at 800-272-3900 and provide online tip sheets, message boards, and education for all stages of dementia. For more information on the Alzheimer's Association, visit https://www.alzheimers.gov/. 

This is an official Alzheimers website of the US government, managed by the NIH and NIA. It serves as an additional place to go for the latest updates on dementia research and caregiver tips. For more information on this organization, visit https://www.alzheimers.gov/. 

 This national organization works to help make effective communication accessible for all. This site also provides access to a speech therapist locator. For more information on the American Speech-Language-Hearing Association (ASHA), visit https://www.asha.org/?srsltid=AfmBOopFbLBlOGOB9s4fcaXySK2nBhQdE7J51_wvamr0LKOb4CnnAPbP. 

This organization serves families across the country who are dealing with dementia related disorders by providing resources, education, and caregiver support. For more information on the Dementia Society of America, visit https://www.dementiasociety.org/. 

This feature is maintained by the Administration for Community Living (ACL) and helps connect families with services for seniors in their area. For more information on the Eldercare Locator from the Administration for Community Living, visit https://eldercare.acl.gov/home. You can also reach the organization at 1-800-677-1116.

This national nonprofit is on a mission to care for families impacted by Alzheimer's disease, activate the next generation of Alzheimer's advocates, and be a leader in brain health research and education. For more information on Hilarity for Charity, visit https://wearehfc.org/. 

This organization’s mission is to optimize quality of life for those affected by Lewy Body Dementia. They aim to provide comprehensive education and support to families navigating this specific type of dementia. For more information from the Lewy Body Dementia Association, visit https://lbda.org/ . You can also reach the Lewy Line at 1-800-539-9767. 

Funded by the Administration of Community Living (ACL), the National Alzheimer’s and Dementia Resource Center (NADRC)'s mission is to provide information and resources available to both individuals and organizations. Be sure to check out their toolkits and webinars. For more information on the National Alzheimer’s and Dementia Resource Center, visit https://nadrc.acl.gov/home. 

This organization brings together voices of expertise from across palliative care and hospice so that families have access to the information they need. For more information on the National Coalition for Hospice and Palliative Care, visit https://www.nationalcoalitionhpc.org/. 

Operating under the National Institutes of Health (NIH), the National Institute on Aging (NIA) serves as a resource hub for information on topics such as healthy aging, age-related conditions (such as dementia), and practical caregiving tips/supportive materials. For more information on dementia, caregiving, and the National Institute on Aging, visit https://www.nia.nih.gov/. 

This organization focuses on assisting those affected by Frontotemporal Degeneration (FTD). They work to provide research, awareness, support, and education to families.  For more information from The Association for Frontotemporal Degeneration, visit https://www.theaftd.org/. 

• Memory Books Episode Guide.pdf
• Memory Boxes Episode Guide.pdf
• For season and garden video prompts, download Season and Garden Video Prompts.pdf
• To find a garden near you, visit https://ahsgardening.org/ahs-garden-network/. 
• To check if a garden is accessible, visit https://wheelmap.org/.
• For hot weather safety, visit https://www.nia.nih.gov/health/safety/hot-weather-safety-older-adults. 
• To see the U.S. National Arboretum, visit https://www.usna.usda.gov/. 

• To better manage agitation, aggression, and sundowning, visit https://order.nia.nih.gov/publication/tips-for-managing-agitation-aggression-and-sundowning. 
• To find treatments for behavior, visit https://www.alz.org/alzheimers-dementia/treatments/treatments-for-behavior.

• For caregiving tip sheets, visit https://www.alz.org/help-support/resources/publications#Caregiving.
• To find a respite provider, visit  https://archrespite.org/caregiver-resources/respitelocator/. 
• To find care in the last stages of Alzheimer’s Disease, visit https://www.nia.nih.gov/health/alzheimers-caregiving/care-last-stages-alzheimers-disease. 
• To create and maintain a care plan, visit https://www.cdc.gov/caregiving/guidelines/index.html. 
• To better plan for dementia, visit https://acl.gov/ltc/basic-needs/pathfinder/dementia. 
• For talking with your doctor worksheets, visit https://www.nia.nih.gov/health/medical-care-and-appointments/talking-your-doctor-worksheets. 

• To better communicate with people with dementia, including nonverbally, visit https://www.alzheimers.org.uk/about-dementia/stages-and-symptoms/dementia-symptoms/communicating-and-dementia. 
• To learn about communication changes in those with dementia, visit https://www.alz.org/help-support/caregiving/daily-care/communications#late. 

• To define long-term care and how to find services, visit https://acl.gov/ltc/basic-needs/finding-local-services. 
• To find local nursing facilities and Medicare, visit https://www.medicare.gov/care-compare/. 

• For guidance on mealtimes, visit https://alzheimer.ca/sites/default/files/documents/Meal-times_Alzheimer-Society-Canada_0.pdf. 
• To prevent dehydration in the elderly with dementia, visit https://www.caregiveraction.org/dehydration-in-dementia/. 
• 13 different foods with high water content, visit https://www.aarp.org/health/healthy-living/best-hydrating-foods/. 

• For meditation and mindfulness guidance, visit https://www.mindful.org/content/uploads/2015/10/Your-Guide-to-Meditation.pdf. 
• For breathing techniques, visit https://www.va.gov/WHOLEHEALTHLIBRARY/docs/Breathing.pdf. 
• To find a music therapist, visit https://www.musictherapy.org/about/find/. 
• For relaxing videos, visit https://www.ithaca.edu/mental-health-flock/stop-and-breathe/visual-relaxation-videos.

• For adaptive clothing, visit https://www.aarp.org/caregiving/home-care/adaptive-clothing-guide/. 
• For bathing, dressing, and grooming, visit https://www.nia.nih.gov/health/alzheimers-caregiving/alzheimers-caregiving-bathing-dressing-and-grooming or https://www.alz.org/help-support/caregiving/daily-care/dressing-grooming.  
• For toileting picture cards, visit https://www.do2learn.com/picturecards/printcards/selfhelp_toileting.htm or download Toileting Directions and Signage .pdf. 
• For tips on toileting, visit https://www.caregiveraction.org/tips-caregivers-toileting/. 
• For tips on incontinence care, visit https://www.caregiver.org/resource/incontinence-dementia/ or https://www.dementia.cindrr.research.va.gov/caregiver_topics/activities_daily_living/toileting_incontinence.asp.