Request from All of Us Research Program at NIH

[From National Heart, Lung and Blood Institute]
NIH’s All of Us Research Program, an historic effort to gather data from at least a million volunteers nationwide, is seeking ideas for important research questions the program might address. This input will help the program identify new features that might be added to the All of Us platform as it continues to build its database, which we hope will become one of the largest, most diverse of its kind for health research. The program would love to hear from you, your organizations and other community members so that we can make the platform as beneficial as possible to participants, researchers and the broader population. 

The All of Us Research Program, a major component of NIH’s Precision Medicine Initiative, ultimately wants to pave the way for the discovery of more individualized approaches to health care. It will be collecting data over many years from the volunteers who sign up. Researchers will be able to access participants’ de-identified information for a variety of studies to learn more about the biological, behavioral, and environmental factors that influence health and disease. The program is currently in beta testing, with a national launch anticipated in Spring 2018. 

All of Us will be collecting ideas with the help of an online tool known as a “use case,” which describes a health problem or research question of interest. Once gathered, the ideas will be considered at a Research Priorities Workshop in March 2018 and will help the program identify how to better support research across a range of health topics. Given the significant investment of resources committed to developing the All of Us Research Program, it is critically important that we obtain broad input from the NHLBI community. Your ideas will help inform how to leverage the program in the best way possible and ultimately advance the research that could lead to life-changing improvements in heart, lung, blood and sleep conditions. 

You may provide input through February 9, 2018. For more information, please visit https://allofus.nih.gov/researchpriorities. If you have any questions, please email the team at AoURPW@nih.gov.